Today we checked Martin into the hospital because of continued heart issues. We've known it was coming for a few weeks. Last fall, Martin saw a doctor for the first time in years (yes, we realize this is not good) because he was having some back pain. In the visit, the doctor checked his heart and found he had an
irregular heart beat. Since then, he has had a series of things to try to get it back to a normal rhythm.
He's been assigned a cardiologist, he's been put on various medications, and in December, they did an
electrical cardioversion on him. It was sort of a traumatic week for all of us, as we were in the hospital with Max for an oral surgery on Thursday, and the next Tuesday, we were taking Martin for his treatment. Martin's procedure went smoothly, but because it was following Max's very lengthy and scary (to Max) procedure, it was stressful for everyone to be in the hospital again.
It seemed Martin's heart had responded as they had hoped, and we were all relieved. But shortly after that procedure was done, they discovered that the irregularities had returned.
Martin has been on a Holter monitor for the last 21 days. It's pretty fancy, hooked up to a Blackberry phone, and they are constantly monitoring it. They called several times, usually because he has done something like sprint down the street or shovel snow. His phone will ring, and the person will ask, "How are you feeling?" He'll have to explain the reason there was a sudden change in his heart. It's pretty cool that they are so closely following his read-outs (I assume there is some sort of computer program which alerts them that there is a change in rhythm).
Anyway, because the irregularities persist, his cardiologist decided to admit Martin to the hospital, administer a drug that will hopefully assist in resetting the rhythm, and then do another electrical cardioversion and monitor the effect of it all.
We dropped him off at the hospital at noon, and then we went to lunch while he got settled. We then went back to visit him at about 3. Max was a bit nervous about the whole thing (last night he was feeling very sick, he thought he had to throw up, and in retrospect, we think he was getting very anxious about Martin going into the hospital). Big tears would suddenly be rolling down his face. Max has also been very unhappy with the current weather, the short days. He says he's done with snow (it just keeps coming down, and the last week has been very cold). Today, the sky was pretty gray, and he felt completely despondent about it. He says he really needs to see some grass.
When we went back to the hospital to visit Martin, we had to walk down a long hallway, and you could see many other hospital patients in their rooms. I didn't really look in, but I got quick glances, and in retrospect, I wish I had paid more attention to know exactly what Max saw. But as soon as we got to Martin's room, Max got very upset and wanted to leave right away. He was again crying and he said he didn't want to tell us what it was, and when I suggested a few things, he got more upset and told me to stop talking because he didn't want me to guess what it was. I think he's afraid if he says his fear out loud it is more likely to happen.
Max will often imagine things that make him feel awful, like if he sees a piece of garbage on the street, he'll imagine chewing on it, and it is so yucky. I think this is a combination of being so extremely sensitive and also being so creative. He is able to imagine all sorts of things and how they could be terrible. I wish I could magically get him to spin things the other way, so that he was more optimistic and happy (so that he could see something and think of something lovely to do with it), but on the other hand, I was sort of like this as a child (albeit I was an bit older of a child when I began to feel such feelings of despair), and no amount of encouraging me to be more positive worked. In fact, I remember it made me feel more like something was terribly wrong with me.
Max said he had a dream that I read his mind and knew what it was he was so worried about, and in his dream, he said it was okay. But when he told me the dream, he said he doesn't want me to know what it is that worries him. I said, "Is it because you are afraid that then I will talk about it and make you think about it more?" And he replied, "Don't talk about it!"
He's in a phase again where he is very anxious to be away from me, and I have to accompany him to the bathroom, to the kitchen to get milk, the the next room to get a toy. He used to ask me to get him something from the kitchen, but he now just asks me to go to the kitchen with him to get it. In short, he needs me to be with him at all times. Every noise in the house makes him jump, and he wishes we didn't have downstairs neighbors, especially such social downstairs neighbors—there are a lot of mysterious noises that go bump in the night, usually a door slamming, or one of them running up or down the stairs, or people erupting in laughter, or a late night decision to move a bookcase, or what sounds like a relay race in the dining room. (?!) I'm sure our noise is even more to take, as they are below us, and we are prone to taking a 10 pm run through the house as well.
Max is very worried about sleeping tonight, as he is used to being "protected from the wall" by Papa. He likes to be in between us. I am hopeful that we'll all be tired and able to fall asleep when we go to bed tonight, but I am prepared for another long night with my very nervous little boy (last night was difficult, and at that point, we still had the "protection" of Martin). I was thinking that Martin is not the only one who is having trouble with his heart. Max has such a heavy heart for such a small child. And my heart aches for his heartache too.
Otto is mostly sunny and light, and every interaction with other people today would result in Max's withdrawal or tears and Otto's chipper conversation, and then some comment from the other person about their different moods. "Not helping!" I wanted to say. Obviously, it's only okay for me to consider their differences, in the quiet of my head or the public of my blog. But never in front of them. Duh. ;) But Otto is also a bit worried about Papa and really doesn't like that he has to be away from us for two nights.
So, while I comfort these two little boys, I have to give some more thought to my other boy, the absent one. I hope that Martin is not too lonely in his room in the hospital. I remember from the time I had to stay overnight and away from the boys that it was very lonely indeed. We are very hopeful to figure all this out soon and get back to our regular lives. We love you, Martin!